Showing posts with label AIDS.... Show all posts
Showing posts with label AIDS.... Show all posts

Sunday, December 2, 2012

Memories of AIDS ...


It was a Sunday afternoon when a familiar voice whispered down the phone line saying, "Hi Jan. It's been a long time."

With these few words came back a wealth of memories, for the quiet voice at the other end of the phone belonged to my high school English and Journalism teacher, Barry. We hadn't spoken in a number of years, out of frank neglect on my part and on his, out of false assumptions based on his unwarranted shame and on my marriage to an Anglican priest and spiritual director. (Despite the closeness of former days, he'd feared the censure and exclusion he'd found amongst his own church members.)

Barry was calling to tell me that, after years of depression and addiction, he had finally come out; dissolved his marriage; entered recovery; met his partner, Jim; and been diagnosed with AIDS. He hadn't long to live.

My initial response was one of anger, then profound grief. Why hadn't I kept in touch? Why hadn't he called me when he'd first been diagnosed? Why had he waited until now when there was so little time left? I felt cheated of time and heartsick.

Over the next six months, we met several times - Barry and Jim, and my husband and me. Barry and Derrick met alone, as well, hashing out their similarly liberal theologies in various coffee shops around the city until Barry could face his death, fairly sanguine and with at least modicum of peace. After he died in a hospital palliative care unit, boney body racked with coughs, Derrick took his funeral in a West End church and we, his loving community, grieved our loss together.

Today, the day after World AIDS Day, many years later, I remember Barry fondly as an extraordinary educator, mentor, and friend who helped me and many other students to transcend painful life experiences and thrive. He taught me to love poetry, to use white space to advantage in a layout, and to never use two words when the one "right" word would do. He also taught me, a painfully shy and pathologically self-sufficient teenager, that it was alright to ask for help.

Barry loved to teach and his students loved him. That same love allowed us to support him, and he us, through the end of his life.  Every year, I wear a red ribbon in his honour and memory and I try to keep the ripple of his love going out into the world in some way. This year, a friend told me about an organization that knits baby dresses for African babes with AIDS who would otherwise be sent home from hospital wrapped in newspaper for warmth. So, I've been knitting dresses for the past several weeks, stitching love and healing intention into each garment.

I hope and pray that the day will come when no one needs to see a beloved teacher and friend fade away or to behold a new baby wrapped in the newspaper and stigma of AIDS. Please do have an HIV test if:

  • You have had 2 or more sexual partners in the past 12 months.
  • You have received a blood transfusion prior to 1985.
  • You are not sure about your sexual partner's risk factors.
  • You are a male who has had sex with another male.
  • You are using street drugs by injection, especially when sharing needles or other equipment.
  • You have a sexually transmitted disease (STD).
  • You are a healthcare worker with direct exposure to blood on the job.  

And why not consider supporting your local HIV/AIDS research, treatment and support organizations, financially or through your volunteer hours, so the ripple of love continues.






Monday, December 1, 2008

World AIDS Day...

Today is World AIDS Day, a day set apart for those of us who have lost loved ones to this voracious disease to remember, to grieve, to celebrate, to renew our support and to look forward in hope.

There are more that 33 million people living with AIDS today, including 2.5 million children.  And there are at least as many caregivers, both family caregivers and helping professionals.  

Supporting someone through the roller coaster of any serious illness is difficult but to do so in the presence of ignorance, stigma and judgement is painful indeed.  Research tells us that caregiving within a community that shuns or denegrates the care recipient increases the risk of compassion fatigue in the caregiver.  Just like the Viet Nam vets in the 1970's, we all need support, understanding and appreciation as we fight on.

How can we support people living with AIDS and those who care for them?  Well, we can wear our red ribbons today as a sign of remembrance and solidarity and tomorrow we can take just one action in our local communities to help reduce the stigma and to improve the quality of life for PWA's and their caregivers.  Perhaps we could...

- Take some time to learn the facts - rather than the myths - of living with AIDS.

- Take a moment to write a note of encouragement to someone living with AIDS
or of appreciation to someone who works with people with AIDS.  

- Make a donation to a local AIDS service organization.  This Christmas,  
Loving Spoonful, an organization that improves the nutritional status of 
people with AIDS through free home delivery of nutritious meals and a baby
food program for babies of HIV(+) moms, is selling scarves through 
Vancouver's Capers Community Markets for $20.00.  Each purchase gifts
both the receiver and the families living with AIDS.  

- Volunteer some of our time and talents to local or international AIDS 
organizations.

-  Call someone you know who is living with AIDS or who is a family caregiver
and offer a specific form of help.  A ride to a doctor's appointment.  Grocery
shopping.  Help in the garden.  Assistance with Christmas shopping or writing Christmas             cards or putting up a tree. Housework. Returning library books or videos. A chat over a cup       of tea.  If that form of assistance isn't needed, ask if there is anything else you can do.  
 
Barry and Jack, two dear friends who lived well with their illnesses until their last breaths, did much to counter AIDS prejudice, one in the teaching community and the other within his beloved church.  Both were talented, sensitive, passionate men who gave much to our community and I am grateful to have known them and their partners.